Join the AMIA 2024 Informatics Summit for a comprehensive conference dedicated to translational bioinformatics, precision medicine, clinical research informatics, data science, and artificial intelligence. Connect with hundreds of researchers, educators, data scientists, and industry professionals for networking opportunities. Explore cutting-edge work in translational informatics and clinical data science from inception to implementation, and delve into state-of-the-art informatics approaches and theories relevant to various healthcare domains.

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In the framework of a Horizon 2020 project (EATRIS-Plus), EATRIS (European infrastructure for translational medicine) and EPF (European Patients’ Forum) have recently formed a multi-stakeholder task force to provide academic researchers with guidance and resources on engaging patients in their research, particularly at pre-clinical and early clinical phase.

The intention of this task force is to address the multiple barriers preventing academic researchers from meaningfully engaging with patients, that were identified through a series of workshops and a survey, as well as to build on the knowledge and learning from initiatives such as PARADIGM and Patient Focused Medicine Development.

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