Privacy Fact Sheets for Mitigating Disease-Related Privacy Concerns and Facilitating Equal Access to the Electronic Health Record: Randomized Controlled Trial

Privacy Fact Sheets for Mitigating Disease-Related Privacy Concerns and Facilitating Equal Access to the Electronic Health Record: Randomized Controlled Trial

The German electronic health record (EHR) aims to enhance patient care and reduce costs, but users often worry about data privacy and security. To mitigate disease-related privacy concerns, for instance, surrounding stigmatized diseases, we test the effect of privacy fact sheets (PFSs)—a concise but comprehensive transparency feature designed to increase users’ perceived control over their data—on increasing EHR use in a simulated online study.

Medigy Insights

Providing simple, transparent privacy fact sheets dramatically increases the likelihood that people will share sensitive or stigmatized health data with electronic health records by reducing their privacy fears and giving them a sense of control.


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